S3E9: Finding Purpose in Action - with Hannah Lowe

This week on the Show Me the Way Podcast, I’m honored to share an incredibly important and inspiring conversation with my new friend, Hannah Lowe!

A previous guest and dear friend from my networking days, Terri Sweeney, introduced us, and I’m so grateful she did. Hannah is a mom of two boys whose family’s journey took an unexpected turn when her youngest son was diagnosed with an extremely rare form of muscular dystrophy called L-CMD.

At just a couple of months old, Hannah’s son was struggling with eating and wasn’t thriving as expected. What followed was a journey of appointments, different approaches, testing, and ultimately a hospital stay that brought news Hannah and her husband never could have anticipated.

Hannah shares the journey her family has been on over the last seven years, but what makes this conversation especially powerful is the incredible advocacy and action she and her husband have taken to make a difference—not only for their son but for other families facing this rare diagnosis.

With only approximately 200 known cases worldwide, finding research opportunities and making progress can be challenging. But through determination, persistence, and a connection with a researcher at the University of Massachusetts, they have found opportunities to collaborate on gene therapy research and other projects.

Hannah is honest about the reality that science doesn’t always move as quickly as we hope and that time isn’t always on their side. Yet her passion, determination, and hope for the future are truly inspiring.

This conversation is a beautiful reminder of how much we’re capable of when it comes to advocating for the people we love, finding resources, creating change, and showing up for our families.

Hannah offers incredible perspective, and I know you’ll walk away from this conversation with a deeper appreciation for the power of advocacy, perseverance, community, and hope.

This is what Show Me the Way is all about—sharing our stories, learning from one another, and finding ways to show each other the way.

Be sure to visit Hannah's website to learn more about LCMD and how to support -https://www.lcmdresearch.org/